After a few weeks, I noticed that nursing was getting quite difficult, as Owen would nurse for only a few minutes, then fall asleep. As soon as I would burp him, he’d wake up and cry because he was hungry. I was literally nursing him every 45-90 minutes.
I had a gut feeling that something just wasn’t right. I took him to see our pediatrician and she discovered he was not gaining any weight, approaching failure to thrive. She suggested I give him a bottle of pumped milk after nursing and come back in a week, which I did, and he had gained over a pound! At that point, we just assumed I wasn’t making enough milk for him.
Our pediatrician then did a once over on him, since we were so close to his 6 week well child check up. It was then she heard a slight heart murmur. It was so slight she wasn’t even sure she heard it, but she insisted that we go see a pediatric cardiologist.
Miraculously, we were contacted by the cardiologists office the very next day, asking if we could come in due to a cancellation. We decided to go in, thinking this would be a quick visit. Well, we sure were wrong! After an EKG and an ECHO, it was determined that Owen had aortic stenosis and coarctation of the aorta. It was so severe, they couldn’t detect a pulse on the bottom of his feet!
We were immediately referred to Motts Children’s hospital in Ann Arbor, MI and surgery was scheduled for 5 days later. We were in shock as we headed to Ann Arbor, but somehow we both survived the 5 hour open heart surgery. He had the Ross procedure done to correct the stenosis. We were told that his current conduit pulmonary valve will need to be replaced again around his 5th birthday.
We are so very grateful to Dr. Ohye and his team, as well as the nurses at Mott’s for saving Owen’s life, and putting up with crazy, uptight parents full of questions every 5 minutes! So far, Owen has had a great life- full of energy and not showing any signs of slowing down! He has his yearly cardiologist appointment in February, where it will be determined when or if he will require another open heart surgery to replace his conduit pulmonary valve.