The Pediatric Congenital Heart Association’s mission is to “Conquer Congenital Heart Disease.” We are accomplishing this through collaboration with patients, parents, providers, and partner organizations to improve quality and outcomes through CHD education, support, research and awareness.
For more information about congenital heart disease, please visit our home page.
Congenital Heart Network
The Congenital Heart Network is a program of PCHA, aimed at improving the lives of those with congenital heart disease and their families through direct support and education – meeting families where they are. Through local activities like peer-to-peer support, care package distribution and educational materials, we are working directly with patients, families and medical professionals impacting one life at a time. Get connected to a group near you.
For more information specifically about the Minnesota chapter, email PCHA.MN@conqueringchd.org
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One important program of the Pediatric Congenital Heart Association that we are working on getting off the ground here in Minnesota is our Conquering CHD Care Kits. Children with congenital heart defects are often immediately sent to another city to have surgery. Their parents may have nothing more than the contents of their wallet or purse. The Care Kits supply educational resources as well as toiletries and comfort items to families with children in the hospital to show our support and to make the experience a little more tolerable.
Some of the items we are looking for to include in these care packages are:
- Coloring books and 8 pack of crayons
- Crossword puzzle books and deck of cards
- Travel sized toiletries especially toothpaste, body wash, and deodorant
- small stuffed animals, lovies, socks, book,
- Single serve snacks (granola bars, crackers, etc.)
- Gum or mints
To view our Amazon Wish List, CLICK HERE
Want to find ways to get involved with PCHA-MN? Contact: firstname.lastname@example.org
Hearing the news “there’s something wrong with baby’s heart” can be devastating. Even with successful intervention, CHD requires ongoing and sometimes intensive, medical care. Your donation helps in so many ways. It is more than our ability to hold the hand of the parent who fears for the life of their child with a reassuring “I’ve been there.” It’s providing the knowledge and hope they need to make important decisions for their child. It’s helping families navigate childhood and, perhaps more importantly, all the changes that come with transitioning to independent adults. It’s about empowering the adults with congenital heart disease who are facing new, unexpected challenges as they are pioneering the way as survivors.
Please give generously.
Send an Email to your member of Congress today. In February, 2017, the Congenital Heart Futures Act Reauthorization Bill was re-introduced in the Senate (S.477) and House (H.R.1222).
Here is the complete text as introduced in the House on 11/5/15. There are differences between how the bill in the House and Senate are written, based on key factors in the political process for each. This is anticipated to be reconciled later on in the bill passage process.
A list of current Co-sponsors, more information, and a link to a sample letter can be found here.
Here in Minnesota, we are fortunate to have Senator Amy Klobuchar, Congressman Rick Nolan, and Congressman Keith Ellison as current Co-sponsors. Be sure to send them a Thank You for their support and commitment to conquer CHD!
We are Conquering CHD