Welcome to PCHA – Michigan

PCHA MichiganThe Pediatric Congenital Heart Association’s mission is to “Conquer Congenital Heart Disease.” We are accomplishing this through collaboration with patients, parents, providers, and partner organizations to improve quality and outcomes through CHD education, support, research and awareness.

For more information about congenital heart disease, please visit our home page.

Congenital Heart Network

The Congenital Heart Network is a program of PCHA, aimed at improving the lives of those with congenital heart disease and their families through direct support and education – meeting families where they are.  Through local activities like peer-to-peer support, care package distribution and educational materials, we are working directly with patients, families and medical professionals impacting one life at a time. Get connected to a group near you.

For more information about our ConqueringCHD Kits care package program, click here. (coming soon!)


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We are Conquering CHD
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Get Connected – Contact Us

“We can do more, together.”  Whether you are in a place where you just need someone to talk to, or you find that you are ready to give back, there is a spot for you at PCHA.

Click here to join our network!

Join PCHA today!

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For more information specifically about the Michigan chapter, email PCHA.MI@conqueringchd.org

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Upcoming Events and Activities

Don’t miss out on these great opportunities to get involved!

Joint Conference on Advances in Pediatric Cardiovascular Disease – University of Michigan C.S. Mott Children’s Hospital
When: Friday, September 29th (family focused content), traditional professional medical session continues on Saturday, September 30th and Sunday, October 1st (while not designed specifically for families, this portion of the conference is open to families as well).
Where: Palmer Commons, 100 Washtenaw Avenue, Ann Arbor, MI
What: Families dealing with congenital heart disease are invited to join us at the 2017 Joint Conference on Advances in Pediatric Cardiovascular Disease Management.

In addition to traditional professional medical sessions focused on the latest advances in pediatric cardiovascular technology and care, we have added a new patient and family focused session to the 2017 line-up!

Topics will include:

– Patient and parent perspectives on life with CHD
– Medical programming to improve child development for CHD patients
– Science and research behind Improving quality of life
– Adult congenital heart care and related topics
– Psychosocial support of families through neurodevelopment, social work, and education support

Registration is required. To learn more or register, Click HERE.

 


Hearing the news “there’s something wrong with baby’s heart” can be devastating.  Even with successful intervention, CHD requires ongoing and sometimes intensive, medical care. Your donation helps in so many ways.  It is more than our ability to hold the hand of the parent who fears for the life of their child with a reassuring “I’ve been there.” It’s providing the knowledge and hope they need to make important decisions for their child.  It’s helping families navigate childhood and, perhaps more importantly, all the changes that come with transitioning to independent adults.  It’s about empowering the adults with congenital heart disease who are facing new, unexpected challenges as they are pioneering the way as survivors.

By clicking the button below – you will make a contribution to the Congenital Heart Network Fund.  As a program of the Pediatric Congenital Heart Association, this fund provides you with the opportunity to direct your money back to the state chapter, or support the network, nationally.

Please give generously.




 


We are Conquering CHD

Caleb Dougherty

Owen’s story

Ava PetzAva Petz 

Ruby Jane Schupach _ SmalRuby Schupbach


Contact Us:

Chapter President – Jenna Wood
Chapter Secretary – Kimberly Baker
Chapter Treasurer – Jen Dougherty