Shortly after it’s initial passing into law in 2010, the Pediatric Congenital Heart Association began hosting the Congenital Heart Legislative Conference – in partnership with the Children’s Heart Foundation and The Adult Congenital Heart Association – in efforts to ensure the Congenital Heart Futures Act is renewed in order to meet the needs of the changing CHD community.
In June 2017, the House Committee of Energy and Commerce held a markup on the Congenital Heart Futures Reauthorization Act (CHFRA), H.R. 1222.
Today all that work has paid off and the Congenital Heart Reauthorization Act is one step closer to being put back into law. With a vote of 394 to 7 H.R. Bill 1222 was passed by the House!
This exciting news is a result of hard work, dedication, and brave voices like yours, but our work is not done! The Congenital Heart Futures Act needs to next make it through the Senate. Tomorrow when we meet with our Senators we will encourage them to follow the House’s lead.
You can help from home!
Are your Senators on the list of Congenital Heart Reauthorization Act co-sponsors?
If not email them, today!!!
Current Cosponsors (Updated 2/25/18)
Senate Cosponsors – Date Cosponsored
- Whitehouse, Sheldon [D-RI] – 4/7/17
- Stabenow, Debbie [D-MI] – 4/7/17
- Klobuchar, Amy [D-MN] – 4/7/17
- Baldwin, Tammy [D-WI] – 4/7/17
House Cosponsors – Date Cosponsored
- Pocan, Mark [D-WI] – 3/28/17
- Connolly, Gerald [D-VA] – 3/28/17
- Soto, Darren [D-FL] – 3/28/17
- Evans, Dwight [D-PA] – 3/28/17
- Holmes-Norton, Eleanor [D-DC] – 3/28/17
- Murphy, Stephanie [D-FL] – 3/28/17
- Swalwell, Eric [D-CA] – 3/28/17
- Loebsack, Dave [D-IA] – 3/28/17
- Stivers, Steve [R-OH] – 3/28/17
- Webster, Daniel [R-FL] – 3/28/17
- McMorris-Rodgers, Kathy [R-WA] – 3/28/17
- Abraham, Ralph [R-LA] – 3/28/17
- Guthrie, Brett [R-KY] – 3/28/17
- Bost, Mike [R-IL] – 3/28/17
- Mullin, Markwayne [R-OK] – 3/28/17
- Nolan, Richard [D-MN] – 3/29/17
- Fitzpatrick, Brian [R-PA] – 4/3/17
- Collins, Chris [R-NY] – 4/4/17
- Velazquez, Nydia [D-NY] – 4/6/17
- Ros-Lehtinen, Ileana [R-FL] – 4/20/17
- Sessions, Pete [R-TX] – 5/3/17
- Griffith, Morgan [R-VA] – 5/19/17
- Ellison, Keith [D-MN] – 5/23/17
- Moulton, Seth [D-MA] – 6/26/17
- Cardenas, Tony [D-CA] – 7/13/17
- Walberg, Tim [R-MI] – 7/13/17
- Meehan, Patrick [R-PA] – 9/5/17
- Find your legislator’s contact information.
- Visit www.senate.gov or www.house.gov
- If this is your first time reaching out, use the contact form on the legislator’s website to send your email.
- If you have identified the Health LA, or had a previous contact with your member or a member of their staff, please feel free to use the direct email address you were given.
- Copy and paste the sample email, below, and personalize:
- Include your legislator’s name
- Add your own personal story where indicated
- Sign with your name, city, state and contact info
- Send it!
—— SAMPLE EMAIL —–
Dear Senator XYZ,
As you are working on appropriations requests for FY2018, I urge you to show your support for continued funding of essential congenital heart disease-related public health research and surveillance initiatives at the Centers for Disease Control and Prevention.
Congenital heart disease is the most common birth defect and the leading cause of birth defect-related infant mortality. Nearly one third of children born with CHD will require life-saving medical intervention such as surgery or a heart catheterization procedure. With improved medical treatment options, survival rates are improving with a population of 2.4 million and growing. However, there is no cure. Children and adults with congenital heart disease require ongoing, costly, specialized cardiac care and face a lifelong risk of permanent disability and premature death. As a result, healthcare utilization among the congenital heart disease population is significantly higher than the general population.
As part of these ongoing public health surveillance and research efforts, the Centers for Disease Control and Prevention recently published key findings that report hospital costs for congenital heart disease exceeded $6 billion in 2013.
Congenital Heart Disease is common and costly, and attention to the needs of this community is critical.
We urge Congress to cosponsor the Congenital Heart Futures Reauthorization Act (S.477). To cosponsor this important legislation please contact Max Kanner (firstname.lastname@example.org) with Senator Durbin’s office or Shayne Woods (Shayne.Woods@mail.house.gov) with Congressman Bilirakis’ office.
This is important to me because: (ONE-TWO SENTENCES)
Share your story briefly, here.
Odds are, someone you know has been impacted by the most common birth defect.
Join us as together, we are #ConqueringCHD.