David was born on August 2, 2006. He is a twin. At my 18 week ultrasound the tech couldn’t find his aorta and the four chambers of his heart were not the correct size. We were referred to Dr. Goble. As she was doing an ultrasound she kept saying, “I can’t believe they found this”. Normal ultrasound techs are not trained to see that much detail in the heart. We were referred to UofM Mott. David’s twin Matthew is completely healthy.
David was diagnosed as HLHS until he was born. We lived in Lansing and due to David’s heart and twins we were scheduled for a C-section. Once David was born his diagnosis changed to Shone’s Syndrome. He had ADS, VSD, Coarctation of the aorta. He also has issues with his aortic and mitral valve. His first surgery was when he was five days old. He’s had a total of four open heart surgeries and two caths. He has been surgery free since May 2012 and isn’t even on any medication. Other then his learning disabilities and that he’s super skinny you wouldn’t even know he had anything wrong with him!