Blog
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Overcoming the Odds with Expert Fetal Cardiology Care: Zeke and Zane’s Story
Zane had three open heart surgeries before he turned 3. And surprisingly, he had a more routine care journey than his brother, Zeke. Zeke and Zane were both diagnosed with hypoplastic left heart syndrome (HLHS) before birth. As far as congenital heart diseases go, HLHS falls on the rarer end of the spectrum. The odds…
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Austin Thomas Erb
9.14.22-11.26.22 When we first learned that Austin would be admitted to Rocky Mountain Hospital for Children PICU for open heart surgery at 3 weeks old, we were nervous and anxious for what was ahead. However, nothing would truly prepare us for what the next 53 days would bring. The feeling of leaving your baby in…
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Addison Gutierrez
Hi my name is Addison Gutierrez! On June 21, 2008 my mom went in for a routine ultrasound. She had low amniotic fluid which meant that she had to have an emergency C section. My dad was a surgery resident at the hospital so he was able to meet her there. I was born at 35 weeks with…
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Hayden’s Legacy: A Safe Space for Grieving Families
We have learned that it is not the walls of Hayden’s House of Healing that make it successful, but rather the spirit of the people that come and bravely share their stories, creating an incredible community of love and support.
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Half a Heart, A Whole Lot of Fatherly Love
Three open heart surgeries and no cure. That was the uncertain future surrounding our son Theo’s life expectancy. In March 2020, the Fetal Heart Center at Children’s Health Dallas determined Theo had Tricuspid Atresia and Hypoplastic Right Heart Syndrome, meaning he would be born with only half a heart. My wife Brooke and I were…
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Stay-at-Home Dad Rides the CHD Rollercoaster with Rainbow Baby
Today, at two years old, my son Emerson is a mostly typical toddler. He wakes up each day in good spirits. His scars, his need for occasional medication, and certain limitations serve as reminders of his medical journey. And what a journey it’s been. Our rollercoaster began with devastating news during Emerson’s 20-week anatomy ultrasound….
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Conquering CHD Community: A Lifeline for Parents Ryan and Jillian
Who do you turn to when you find out your happy and seemingly healthy two-month-old needs heart surgery? At our two-month well visit, my wife Jillian and I were stunned to hear our daughter Beckett needed to see a pediatric cardiologist. They’d found a heart murmur, and we soon learned Beckett was born with a…
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Peyton’s Parents Give Hope to CHD Community
In her 12 days of life, Peyton Rae Brean showed her parents, Lisa and Corey Brean, spunk, sass, love, and strength. Her personality radiated inside the NICU, and her parents cherished every moment spent inside those four walls. “I read somewhere once that ‘instead of teaching my daughter about the world, I would have to…
