Blog
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Happy 2nd Birthday, CCHD!
We’re Celebrating! Our 2nd Birthday and Two Years Conquering CHD! Look how much we’ve grown: This list highlights our programs that have had a national impact in the last year, including the meaningful Summit on Transparency and Public Reporting** and our in demand Guided Questions Tool.Our programs work to: Give Knowledge Hosted Congenital Heart Legislative Conference* Hosted Summit…
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Unexpected Hero
Special thanks to Mark Gentle who agreed to share his son’s story with us. The following photo was also shared with permission. He was scarred. He was scared. And now, he’s a superhero. Carter recently underwent open heart surgery to repair a problem with his heart he has had since he was born. The surgery left a…
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Can You Hear Me Now?
Guest Blogger Chris Perez knows first hand that even the littlest action can have a big impact. Conquering CHD offers many ways to get involved. Click on any of the following for more information or to get involved: volunteering, contacting your lawmakers, sharing your story. By working together, even the smallest of actions can help…
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Finding Hope in Washington D.C.
Tori is mom to 6 amazing children. 1 grown daughter and 5 boys. 4 are here on Earth and 1 is forever 13 months old and watching over us from heaven. You can read more about her journey on her blog: Finding Hope without Sterling. She has been a tremendous advocate for the Conquering CHD. Here,…
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HLHS Dad goes to Washington D.C.; Part 1
Chris Perez attended the Congenital Heart Legislative Conference on February 25-26, 2015. Here, he writes about the first day of this adventure. As the father of a child with a serious congenital heart defect, Chris regularly writes about his experiences in the CHD world on his blog: Half Heart. Whole Life. As Day 1 began to arrive it…
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A Time to Gather
A Time to Gather (Mile)Stones Together: The Importance of Marking Our Days As Solomon said in Ecclesiastes, “There is a time for everything–” including a time to celebrate. Sometimes, it’s easy for the days to blur together–after all, they often fly by! I’ve heard my more cynical friends scoff at those who attach meaning to…
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What’s a Birthday without Party Favors?
And the winner is: Diane Kowalik Thank you to all those who entered. Our contest is now over. A winner was picked at random from qualified entries using Random.org As we celebrate our 1st Birthday, CCHD is giving away a fun assortment of Birthday Party Favors including: Happy Birthday Hat Happy Birthday Sunglasses Birthday…
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Birthdays – Reflections and Celebrations
My sister, Kristin, was born in January 1980 with TOF. Her complete repair, at Boston Children’s, was one of the first in the country. I know this because Wikipedia states that the complete repairs began in 1981 and I know my sister’s surgery happened in late 1980.* I never thought about this until my own…
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Celebrating our 1st Birthday!
In the congenital heart disease community, we don’t take birthdays for granted. Join us as we celebrate CCHD’s 1st Birthday! Learn more about how you can get involved throughout the month of August: Give a gift! Tearing open a birthday present is fun. Giving one brings great joy, too! Your monetary gift, in celebration of our birthday,…
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Birthday Badges
If you would like to share the birthday spirit – consider using our birthday badge!! For other ways to get involved check this out!
