Blog
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Congenital Heart Futures Reauthorization Act 2024
March 12, 2024 There’s positive news for the millions of Americans living with congenital heart disease (CHD) and their families. The Congenital Heart Futures Reauthorization Act (H.R. 7189) has successfully cleared a crucial hurdle by being marked up favorably by the House Energy and Commerce Health Subcommittee. This critical development signifies continued federal support for:…
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Pushing Boundaries with Adult Congenital Heart Disease: Chris’ Story
Chris was 15 years old when he decided that he wanted to be a firefighter. This was a bold move at the time, when most patients with his congenital heart condition — dextro-transposition of the great arteries, or d-TGA — were advised to avoid exercise and strenuous activity. But Chris was already pushing these boundaries…
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CDC Role in the CHD Community
Welcome to our latest blog update, where we delve into the significant contributions of the Centers for Disease Control and Prevention (CDC) and the National Center on Birth Defects and Developmental Disabilities (NCBDD) in the realm of Congenital Heart Disease (CHD). These organizations are at the forefront of advancing our understanding and improving the lives…
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National Committees Are Back!
We have some fantastic news to share with all of you! After a hiatus, we are thrilled to announce the triumphant return of Conquering CHDs National Committees.
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How to Help Your Child Stay Still During Medical Imaging
Medical imaging plays an essential role in CHD care. However, for parents, the thought of their child undergoing medical imaging can be a source of stress and anxiety.
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Conquering CHD Welcomes Carissa Ostrom as Executive Director
Dear friends and community, As we celebrate ten years of Conquering CHD, it also marks my 18th year as an advocate for congenital heart disease. I am entering into a new season of life as our youngest son has successfully transitioned to managing his CHD care and is off to college this fall. It is…
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Patient Engaged Research Funding
Research funding is an essential part of Conquering CHD.
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Hayden’s Legacy: A Safe Space for Grieving Families
We have learned that it is not the walls of Hayden’s House of Healing that make it successful, but rather the spirit of the people that come and bravely share their stories, creating an incredible community of love and support.
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9 Things to Monitor When Taking Medication for Congenital Heart Disease (CHD)
When it comes to managing CHD, medication plays a crucial role in ensuring optimal heart function and preventing potentially life-threatening complications. However, it’s essential to monitor certain aspects of your health while taking these medications to ensure their effectiveness and avoid potential side effects. Some types of monitoring can be done right at home; other…
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Top 10 Things to Know about Mental Health & CHD
When heart defects are first diagnosed, the heart structure and function get all the attention. However, congenital heart disease (CHD) may have a lifelong impact on your whole being. This includes your mental health. It is important that we make mental health care a normal part of CHD care. As an adult with CHD we…
