Ask Your Member of Congress to Sign the Dear Colleague Letter

 

ACTIONALERT

ACTION ALERT: Urge Your Members of Congress to Sign the Congenital Heart Dear Colleague Letter

 

Act Now!

Ask your Representatives and Senators to cosign a letter lead by Senators Durbin (D-IL) and Grassley (R-IA) and Representatives Bilirakis (R-FL) and Schiff (D-CA) to the Chairmen and Ranking Members of the Labor, Health and Human Services, Education, and Related Agencies Appropriations Subcommittees urging continued federal investment in public health research and surveillance initiatives focused on addressing the lifelong needs of Americans with congenital heart disease.

This letter helps ensure that this critical funding continues and builds champions for congenital heart disease in Congress.

Here is an example of the letter that was distributed to the House.

Email your legislators, today!

Take action in three easy steps:

  1. Find your legislator’s contact information.
  • If this is your first time reaching out, use the contact form on the legislator’s website to send your email.  Visit www.senate.gov or www.house.gov
  • If you have identified the Health LA, or had a previous contact with your member or a member of their staff, please feel free to use the direct email address you were given.

2. Copy and paste the paragraph below – adding your own personal story.

3. Send it!

You did it!  If you successfully connect with your legislator or their office, let us know you made contact by completing our online form available here.


 

Sample Letter:

Subject: Sign the Congenital Heart Appropriations Dear Colleague Letter, Today!

Dear Senator/Congressman [Fill in name here]

I’m writing to urge you to support continued federal investment in public health research and surveillance initiatives focused on addressing the lifelong needs of Americans with congenital heart disease by cosigning a letter lead by Senators Durbin (D-IL) and Grassley (R-IA) and Representatives Bilirakis (R-FL) and Schiff (D-CA) to the Chairmen and Ranking Members of the Labor, Health and Human Services, Education, and Related Agencies Appropriations Subcommittees


Every 15 minutes, a baby is born with congenital heart disease, the most common birth defect and leading cause of birth defect related infant death.  Even for those who receive successful intervention, it is not a cure. Children and adults with congenital heart disease require ongoing, costly, specialized cardiac care and face a lifelong risk of permanent disability and premature death. As a result, healthcare utilization among the congenital heart disease population is significantly higher than the general population.

Continued federal investment is necessary to provide rigorous epidemiological and longitudinal public health surveillance and public health research on infants, children, adolescents and adults to better understand congenital heart disease at every age, improve outcomes and reduce costs.

Demonstrate your support for this serious public health issue by signing the Congenital Heart Dear Colleague Letter.

  • In the House, please contact Kristin Seum (kristin.seum@mail.house.gov) with Representative Bilirakis or Dao Nguyen (dao.nguyen@mail.house.gov) with Representative Schiff to add your name to the Congenital Heart Appropriations Dear Colleague Letter. Deadline: Friday, March 18
  • In the Senate, join lead authors Senators Durbin and Grassley by contacting Max Kanner (max_kanner@durbin.senate.gov) in Senator Durbin’s office. Deadline: Friday, March 18

If you would like any additional information or sample report language to use, as well, please contact Amy at abasken@conqueringchd.org.

Thank you,

[Your name]

 

 


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