Action Alert – Support Congenital Heart Disease Research Funding

Email your legislators:

FUNDING CDC DATA COLLECTION

 

Action Needed

Email your lawmakers and ask them to provide $7M to fund CDC surveillance efforts.

  1. Visit your lawmaker’s website where you will find a contact us form.  You can find their website at www.house.gov or www.senate.gov
  2. Using the suggested talking points and your own personal information, edit the letter below and paste it into the online form.
  3. Let us know you took action and complete the I did it! form on our website.

Suggested Talking Points:

  • CDC funding has already been authorized to help better understand the congenital heart disease population
  • Currently, $2.9M has been appropriated, and CDC is funding 3 pilot adolescent and adult surveillance projects.
  • Additional funding is needed to continue and expand these efforts across the life span, including pediatric populations.

Email template:

Dear Senator/Congressman [Fill in name here],

I am writing to ask you to include $7M in funding for the Centers for Disease Control and Prevention to adequately support congenital heart defect surveillance across the lifespan, in your FY2015 request.

[Using 4-6 sentences, tell your story here and why research is important to you.]

As the most common birth defect, resulting in costly life-long care, congenital heart disease remains a serious public health burden and must be made a priority.

If you would like any additional information or sample report language, please contact advocacy@conqueringchd.org.  

Thank you,

[Your Name, Your city/state]

To learn more about the PCHA advocacy program, watch this video, or visit our website.

Comments are closed.