ACTION ALERT: Congenital Heart Futures Reauthorization Act is moving forward – we need your help!

ACTION ALERT:

Congenital Heart Futures Reauthorization Act is moving forward – we need your help!

The Congenital Heart Futures Reauthorization Act passed the House, this past February and is now making its way through the legislative process in the Senate.

We are thrilled to report that this Wednesday, July 25, the Senate Health, Education, Labor and Pensions (HELP) will hold a mark-up of the CHFRA. This is an essential step to move the bill out of Committee toward becoming a law.

The Congenital Heart Futures Reauthorization Act will authorize the CDC and NIH to build upon existing successful programs to address a leading public health issue and improve the quality of life and care for individuals with CHD.  More specifically, the bill will:

  • Expand the CDC’s longitudinal surveillance of individuals with CHDs across the lifespan, including regarding healthcare utilization and demographics through a cohort study, leading to evidence-based practices and guidelines for CHDs.
  • Authorize an awareness, outreach and education campaign at CDC, which will help inform the children, adolescents and adults with CHDs who are unaware of their high risk of additional complications as they age about the need to seek and maintain lifelong, specialized care.
  • Assess the research needs and existing projects related to CHDs across the lifespan at NIH, which will allow us to better understand the current state of biomedical research and what gaps may exist.  

 

ACT NOW:

This is the perfect time to reach out to your Members of Congress and remind them to support S.477 (The Congenital Heart Futures Reauthorization Act). Email, call, tweet, connect with them today!

We are also specifically targeting the offices of those who are on the HELP Committee, participating in Wednesday’s mark-up.  If you live in the following states, please call or email your legislator, today!! See below for a complete list.

  1. Find your Senators: www.Senate.gov
  2. To send a quick tweet: Calling on @SENATORNAME to support S.477 in upcoming mark-up on Wednesday. It matters to me and 2.4M others with #CHD. #Conqueringchd #CHD4Life
  3. Call or email:
    1. If you are calling be sure to include the following:
      1. My name is __________ and I’m calling from __________.
      2. I’m asking the Senator to support S.477, the Congenital Heart Futures Reauthorization Act during the mark-up process, this Wednesday, July 25
      3. Congenital Heart Disease is important to me because ___________
      4. This legislation will help build upon existing work by the NIH and CDC, build upon existing successful programs to address a leading public health issue and improve the quality of life and care for individuals with CHD.  
    2. If emailing:

Dear Senator _____,

I’m writing from ___________.  As your constituent, I am asking you to support S.477, The Congenital Futures Reauthorization Act  during the mark-up process, this Wednesday, July 25.

This important legislation will authorize the CDC and NIH to build upon existing successful programs to address a leading public health issue and improve the quality of life and care for individuals with CHD.  

This matters to me because ____________.

Thank you for your time and consideration.

Sincerely,

Name

 

Senate Help Committee Members:

 

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