#CHDAware – Heart Month 2018

CHD Awareness Week has come to a close but there are still a few key ways to help us raise awareness through heart month and all year long!


Participate in our Social Media campaign! 

Use your social media talents to shine and join the #CHDAware social media storm

February 7-14, the entire community comes together to help others understand how common congenital heart defects are, the need for research, and access to quality care. At PCHA, our programs serve to educate parents, physicians, and lawmakers spreading awareness all year long, but we love to join in the February Fun as we strive to educate those who may not be as familiar with CHD.

In the know – Help others understand the impact of CHD and what the Pediatric Congenital Heart Association is doing about it by liking and sharing our statistic infographics. We have a lot to share, this year, so look out for these graphics all month long!

Make it personal – Using the hashtag #CHDAware, add details about your story, your experience, and be sure to Include a message about an aspect of CHD of importance to you. Examples: the need for research funding, advocacy, or support for fellow families. This is all about sharing how Congenital Heart Disease impacts patients and families and how we, together, can turn awareness into action. Don’t forget to tag us on Facebook, Twitter, or Instagram!

Facebook frame – As patients, parents, bereaved families, and providers we are all #CHDAware. Show your support for heart month and CHD Awareness week by adding this effect to your profile picture or video!

Invite others – we can do the work for you – simply guide them to our social media pages.  Ask them to like and follow us. We’ll make sure they STAY engaged! Click on an icon to find us:

Facebook twitter-button iglogocolor

Month-long #CHDAware Challenge 

Join the fun: become a fundraiser and earn great prizes!

This is our only social media fundraiser for 2018 and we need your help!

Our Goal: $20,000 to support our essential programs offering care packages, hospital trainings, patient and family resources and so much more.

Thanks to all your hard work!  YOU are making a difference. We’re just halfway through the month with over 90 registered fundraisers! It’s not too late to join and win some amazing prizes!

Click here to for more information about the challenges, prizes or simply how to set up your fundraising page.

Keep up the great work! Together, we are #ConqueringCHD!


Where in the World is Echo? 

We spy with our #CHDWise eyes…..ECHO!

Echo has been traveling the globe giving knowledge and hope to new CHD families and providers. He’s been spotted in some pretty amazing places! This month, we are going to be featuring some of the fantastic places Echo has been to as he blazes a #CHDWise trail everywhere he goes!

Submit your picture of Echo on your adventures to Echo@conqueringchd.org and we may feature it on our social media pages with the hashtag #ISpyEcho


Success!!

 

We brought back two fan favorites for the first half of heart month and because of you we we sold a total of 126 that raised $1,090 that will directly support the lives of CHD patients and families through our great programs like transparency and public reporting, the guided questions tool, conquering CHD care packages, and the legislative conference.

Shirts will be delivered 2-3 weeks AFTER the campaign closes (feb.14th).

 

 


Gear Up to support heart families!

Check out our online store for #ConqueringCHD apparel, bags, buttons, and morel!

Don’t forget to pick up your very own Echo the Owl! The heart on Echo’s chest represents the community’s efforts to conquer congenital heart disease, making this a must for everyone you know who is touched by CHD.

Order your very own Echo the Owl, today, and we will also add one to a care package to be given to someone hospitalized due to CHD. Echo can be Purchased in our online store HERE!

 


Turn Awareness into Action!

Each one of us has a story to tell. These stories make a great impact when told the right way to the right people. Share your story with your representatives.  Ask them to join you in #ConqueringCHD by becoming cosponsor of the Congenital Heart Futures Reauthorization Act (CHFRA).  Click here to learn more and see if your lawmaker has already signed-on.  If they have, be sure to thank them for #ConqueringCHD!!

 

 

 

 

Then, on February 27th, from the comfort of your own home, you can support the effort of 190 advocates who will be visiting their lawmakers on Capitol Hill in Washington D.C. to discuss CHD research funding and this legislation  Stay tuned for ways that you can get involved “off the hill.”