At 24 weeks pregnant, we learned that our 4th child had a congenital heart defect – we were diagnosed with Pulmonary Atresia with VSD. We decided to transfer our care to C.S. Mott’s Children’s Hospital after the initial diagnosis, as we are located in Lansing.
Four days before we were scheduled to be induced at Mott’s, my water broke in the middle of the night, so we rushed to Sparrow and awaited meeting our newest addition. Ruby Jane was born on October 23, 2015 and weighed 6lb 3oz. When the doctor said “It’s a girl” we started crying- I had wanted another girl to name after my beloved Grandma and we had 1 girl and 2 boys already. Ruby spent the first 3 days of her life at Sparrow in the NICU because they did not know how to take care of her, and because she was born on a Friday, we had to wait until Monday to be transferred to Mott’s. We did not get to hold her until later in the evening on her birthday, and that was extremely difficult. Her brothers and sister only got to meet her through Facetime until we got to Mott’s.
Ruby spent the first week of her life at Mott’s for observation and then we were able to go home and let her just be a baby. At one month old, she had her first open heart surgery by Dr. Romano to place a shunt in her pulmonary arteries to help them grow. We only had to stay in the hospital for one week before being discharged. At 5 months old, she had a brief scare and we were rushed to Mott’s for observation and a heart cath. It was then determined that she needed a larger shunt, so we were scheduled for our next open heart surgery 3 weeks later. Ruby has had 2 heart caths and she is scheduled for another heart cath at the end of January. For the moment, we are at a standstill and just waiting for her to grow so she is ready for her full repair.
Ruby is a little behind in her milestones, but overall she is doing great. She just started walking and she loves ice cream! Overall, we are so amazed at how strong she is, just like all heart babies. There are not enough words of thanks to Dr. Romano, Dr. Goble, or any of the other doctors and nurses at Mott for saving our baby girls life.