Songs of Love for the Heart

“When words fail, music speaks.”

Once said by Hans Christian Andersen, best remembered for his fairy tales like The Little Mermaid and The Snow Queen that inspired Frozen, this renown Danish writer understood the importance of music.

With any serious child illness, there are times when words fail us. PCHA was asked to try out a product that steps in for your child in these moments. It’s called Songs of Love, a nonprofit foundation dedicated to providing personalized uplifting songs, free of charge, for children and teens currently facing tough medical, physical or emotional challenges. At this early stage in our 3 year old daughter’s journey with CHD, we want to instill the fact that her scar from open heart surgery is something to be celebrated. It is a beautiful reminder that she is with us, happy and healthy. So we requested a song for her.

The process was very simple. We went online and filled out the form. We waited five weeks and received an email that it was complete and on it’s way in the mail (and to note, I appreciated that they realize to a young child, physically receiving this gift gives it greater anticipation and awe versus opening an email, though you can request a digital file be sent). And then we waited.

As my husband and I are both lifelong musicians, we weren’t expecting the next masterpiece or top 40 song, but we also weren’t expecting her reaction when we played her personalized song. When filling out the form, I had put in more than enough special interests, hobbies and favorite things to give the musician something to work with, and I also was very specific in that she loves a heavy beat she can dance to, pop or rock, noting that she really loved the song Immortals (which we discovered while watching Disney’s Big Hero 6). So when we popped the CD in and it began to play, we just had to smile at the instant burst of excitement and energy as she twirled, danced and bopped around for her entire 3 minute song. And then we knew we would be singing it for weeks, when she told us to replay it three more times in a row.

Words sometimes fail us, especially in trying to explain to young children about a complex condition, and in our case, how to embrace a lifelong journey with CHD full of the unknowns that await. Songs of Love is a fun resource that PCHA members find fitting for younger children. While we cannot fully explain to our daughter just how miraculous her repaired heart is, and how her scar is a beautiful reminder of that, Songs of Love helps her understand this in a small way as someone wrote a special song, just for her, in celebration of her heart.

To request a free, personalized song and for more information, visit Songs of Love.

Frances volunteers as the blog coordinator for PCHA. She graduated from USC and previously worked in film, marketing, and software consulting. Frances resides in California with her husband and daughter – who was born with severe mitral valve prolapse and a VSD and underwent open heart surgery at 8 months old.

Happy Birthday PCHA – #ConqueringCHD Week!

There are so many ways to help us recognize our 3rd Birthday!

1) Use your Social Media talents as we work to reach 250,000 people!

It’s your week to shine as a PCHA #ConqueringCHD social media ambassador!

In February, our education efforts had a total weekly reach of 210,000 people for our #CHDAware campaign.  Wow- that is a huge impact!  Let’s do it, again!!!

Join the Social Media Blitz 

During the week of August 21-27 help us cover social media with facts and faces. Like, share, comment and tag using the hashtag #ConqueringCHD.

In the know – Help others understand the impact of CHD and what the Pediatric Congenital Heart Association is doing about it by sharing our memes throughout the week.

Make it personal – Using the hashtag #ConqueringCHD, share stories and photos about those in your lives who are Conquering CHD. Tag us on Facebook, Twitter or Instagram. Whether it is conquering CHD at the doctors office, at school, on the playing field, welcoming a rainbow baby, helping others, advocating, or celebrating a birthday of your own, during #ConqueringCHD week, August 21-27, we want to celebrate with you!!

Invite others – we can do the work for you – simply guide them to our media pages.  Ask them to like or follow us.  We’ll make sure they STAY engaged!  Click on an icon to find us:

Facebook twitter-button linkedin iglogocolor

2) Help us raise $10,000

It couldn’t be easier –  simply click here or text CHD2016 to 71777 to donate or become a fundraiser yourself.

Give a gift that really makes a difference:

Help us reach our goal of $10,000 to support vital programs including helping patients talk to their doctors, making sure kids get great care their whole life, and fighting for more federal research funding.

  • $25 allows us to reach 1000 people through social media
  • $50 helps 10 newly diagnosed families through our Guided Questions program
  • $500 sponsors one key hospital site visit

Join in on the fun and earn great party favors:

Become a fundraiser yourself – simply ask 10 friends to give $10! All the tools you need are right there on your phone!  As a fundraiser, you will receive regular emails to provide inspiration and support in your efforts.  When you reach your goals, we will send you party favors:

  • Raise $100 and receive a free PCHA “Conquering CHD” t-shirt
  • Raise $500 and receive a t-shirt and PCHA Canvas tote bag
  • Raise $1000 and receive a t-shirt, tote bag, and exclusive PCHA baseball cap!

Need inspiration?  Check out these ideas:

  1. Simple Facebook Post: our experienced fundraisers said that with a simple post on Facebook and one email to their families and friends, it doesn’t take long to reach $100!
  2. Night Out for CHD: Mary Adair from San Antonio, Texas has arranged for several charitable nights out at local restaurants where proceeds earned during a specific time period benefit PCHA.
  3. Lemonade Stand: Nicholas Basken from Wisconsin is planning a lemonade stand on the corner, he will also invite friends and family to participate through the Virtual Party fundraising platform (above).
  4. Check out our Fundraising Toolkit for more fun and easy ideas!! Any funds raised off-line can be added to your online fundraising total.  Want to learn more, email

3) Write your Members of Congress

AA - Futures ActTell them it is #ConqueringCHD Week.  Ask them to join you in #ConqueringCHD by becoming cosponsor of the Congenital Heart Futures Reauthorization Act (CHFRA).  Click here to learn more and see if your lawmaker has already signed-on.  If they have, be sure to thank them for #ConqueringCHD!!

4) Get the Swag:

Tori - Bat KidCheck out our online store for #ConqueringCHD apparel and buttons.  Don’t miss our great strawberry smelling pens, too!!

Click to sign-up and saveAnd don’t forget to Put Safety First and sign-up for the Rapid SOS.  You can learn more and sign-up, here.

Social Media Log 2016The party goes on after #ConqueringCHD Week.  Consider joining us for our Second Annual Congenital Heart Gala on September 24th, 2016 at the Milwaukee Art Museum, Milwaukee Wisconsin.

Finally, Celebrate all you are doing as, together, we are #ConqueringCHD!

Knoweldge. A Voice. Hope