Advocacy Success – Increased CHD Funding!

Your efforts are working!  

Congress is working hard to wrap things up before the end of the year.

We are thrilled to report that the anticipated budget includes an increase of $1.1 million from $2.9 million to $4 million in 2015 to fund public health research and data collection through the Centers for Disease Control and Prevention, as outlined in the Congenital Heart Futures Act.

Additionally, congenital heart disease was included, again, in the Department of Defense’s Peer Reviewed Medical Research Program, which is funded at $247.50 million, an increase of $47.5 million! This is a competitive grant opportunity for which CHD researchers can apply. We also had members of the CHD community reviewing the grants.

We must continue our efforts!

Each year, advocates, like you, connect with their lawmakers through emails, phone calls and visits.  Your voices are being heard – despite serious budget cuts, we continue to see increases in CHD funding opportunities.

We are making progress, but there is still a huge need for funding of public health research and data collection to better understand congenital heart disease across the lifespan.

Your are the answer!  Your story matters.  Take Action:

Sign a petition.

Write your legislator.

Donate to support our advocacy efforts.

Join us in Washington D.C.!

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Advocacy Success – Newborn Screening

PCHA has been supporting the efforts of the March of Dimes to ensure passage of the Newborn Screening Saves Lives Act.  We have reached out to you in the past to contact your legislators about this key support for screening including CCHD screening.  We wanted to you with an exciting update!!

From our Friends at the March of Dimes:

Breaking News: Senate Passes Newborn Screening Bill!

We are one step closer to the finish line! The U.S. Senate passed H.R. 1281, the Newborn Screening Saves Lives Reauthorization Act (NBSSLRA), by unanimous consent on December 8. The bill now returns to the House for ratification of an amendment included by the Senate.  If the House approves this final change, the bill will go to the President for signature into law. Thanks to all of you for your commitment and always answering the call to action! It is because of this dedication and all of your efforts that legislators listened and worked to get this important legislation passed.
As a reminder, NBSSLRA extends federal programs that provide assistance to states to improve and expand their newborn screening programs; supports parent and provider education; and ensures laboratory quality and surveillance for newborn screening programs. For more information, check out our press release.
Your hundreds of phone calls, letters, meetings and messages letting legislators know how important this issue is to you made a real difference! Congressional offices let us know they were hearing from constituents and stakeholder groups alike about the urgent need to pass this bill. We want to also thank our champions Senators Kay Hagan and Orrin Hatch and Representatives Lucille Roybal-Allard and Mike Simpson for their steadfast efforts to help improve the health of babies nationwide.
Stay tuned as more news and movement on this bill develops throughout the week!