PCHA supports the screening of newborns for critical congenital heart defects. This legislation indirectly supports CCHD screening oversight efforts.
From our friends at the March of Dimes:
We’re at a critical point where YOUR voice can make a real difference! The House passed the Newborn Screening Saves Lives Reauthorization Act (H.R. 1281) in June; however, the Senate failed to take action on final passage of the bill before adjourning for the month of August. Please contact your Senators and tell them to take swift action to pass this important legislation when Congress returns in September. There aren’t many days left for the Senate to take action.
Tell your Senators to pass the Newborn Screening Saves Lives Reauthorization Act.
The Newborn Screening Saves Lives Reauthorization Act will renew federal programs that provide support and guidance for state efforts to ensure that every newborn is tested for at least 31 conditions present at birth which, if undetected and untreated, can lead to serious disability or death. Please make your voice heard on behalf of babies – they are counting on you!
P.S. Mark your calendars! September 8th will be a National Newborn Screening Saves Lives Call-in Day if the Senate hasn’t passed the bill.
Taking action is easy:
1) Find your Senators at Senate.gov
2) Call the DC office number listed or complete the online email form:
Simply tell them to “Pass the Newborn Screening Saves Lives Reauthorization Act”
3) If you take action, please Tell Us About It!